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Old 02-18-2009, 02:29 PM
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jeanb jeanb is offline
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Join Date: Aug 2006
Location: sonoran desert
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jeanb jeanb is offline
Senior Member
jeanb's Avatar
 
Join Date: Aug 2006
Location: sonoran desert
Posts: 1,352
15 yr Member
Book maybe some insight...

Girija,

I don't know - but Parkinson's always seems to be singled out.

Here is my personal story:

I was in the PRECEPT clinical trial for 2 years. During that time I was in an email group with about 15 other trial participants. A subset of the folks in my email group was doing very well - so well that they had no disease progression and didn't have to start "regular" pd meds. We all figured they were on the "good stuff."

As it turned out, these people were on the placebo, and as part of the larger placebo group, their group did better than the people who were taking the experimental drug.

I was in the group taking the lowest dose of the experimental drug, and my group did the worst (go figure!)
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Jean B

This isn't the life I wished for, but it is the life I have. So I'm doing my best.

Last edited by jeanb; 02-18-2009 at 02:30 PM. Reason: clarity
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"Thanks for this!" says:
girija (02-18-2009)