Hi Cherie!

I'm really glad you're here. I learned a lot from your posts at that other place.

After I stopped Avonex, I had a wonderful burst of energy for awhile. I threw a party, cooked every day, baked lots of cakes and bread, I was Superwoman. That didn't last long. A few weeks ago I lost my ability to pee and had to get catheterized. Both feet went numb, my tremors got worse, and I was exhausted--just getting my mail tired me out. My bladder is now working as it should, and I can feel my feet. But my tremors are getting extremely bad now, and I have insomnia, L'Hermittes, and I can't cool off, even though it's 15 degrees outside. I feel pretty lousy. My doc ordered two weeks of bedrest, and I took 5 days. I'm also feeling a little guilty for not doing anything to help my disease, but I know I shouldn't feel like that. I eat very well, but I smoke. I'm also losing weight. Since I was 14 I've maintained at 98 pounds, and today I'm down to 92, which is not good at all. Bearygood told me to look into MS and Malabsorption, and it seems to fit me like a glove. I called my doctor and told him about it so we can investigate when I see him in a few weeks. He's very open minded, so that's something.

I'll be getting back on it when I can afford my 3,000.00 deductible, but until then, I'm not quite sure what to do. It's been an interesting month to say the least!

April