Twinkletoes,

Thank you for asking about my appointment. I have actually been having one of those days that I have been crying at the strangest things.....so I want you to know how much I appreciate that you took the time to ask.

I saw the specialist on Monday the 16th. We reviewed all of my labs and MRI's and he did some testing of my balance, eyes, etc. (I would never pass a DUI test sober at this point!)He then told me that he believes that I may have primary progressive MS. He would like to do another MRI of the brain, as well as the thorasic, lumbar and cervical to compare to my MRI in December and the spine from 2006. He wants to have it done with the contrast to see if the lesions are active. Now I am not real clear what this all means. I have read some but almost feel that this is somehow really not happening and that I am having a nightmare or something. I just don't want to breakdown in front of my daughter....she means the world to me and I just wish I could be stronger for her, but I am feeling so confused, mad and scared.