Quote:
Originally Posted by Snoopy
Cindy, for what it's worth - my neuro asked me why I prefer not to use a DMD and I told him I was concerned a DMD would cause more problems than it would solve.
He sat back and said he found my answer interesting. He had gone to a medical convention where one of the speakers said there is a possibility the DMDs could be making those with MS worse not better 
Is that what has happened to you?  |
My (newer) neuro recently asked me the same question, Snoopy. I told her that while the CRABs may reduce relapses by 30%, IMHO long-term studies have not proven them sufficiently effective in the longer run, for the majority of people.
She said "you know why?", "because they can't track down enough patients to show one way or another".
I said "exactly!". Given that those people are ALL provided free drugs to stay in the long-term studies, if they were effective, wouldn't there be a ton of people they could easily track down to see how they are doing?
I do think they are potentially effective (and tolerable) for a minority of patients . . . and when they seem to be, those patients should probably stay on them. Guaging efficacy can be difficult too though ...
Interesting that they think they might be making some people worse though. I wonder how they guage that? I know that people with Devic's/NMO are supposed to completely avoid DMD's . . . which is a good reason to be NMO-IgG tested if a person has large spinal lesions. (I'm going for a test soon ....)
Cherie
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I am not a Neurologist, Physician, Nurse, or Hairdresser ... but I have learned that it is not such a great idea to give oneself a haircut after three margaritas
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