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Member
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Join Date: Jan 2008
Location: Milwaukee WI
Posts: 245
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Member
Join Date: Jan 2008
Location: Milwaukee WI
Posts: 245
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Hello and welcome ~!
First I just want to let you know that you have support and understanding here ok? I was on my limbo journey for years too.
After 4 years of yes..no..maybe so.. and a change in insurance.. me MS doc who was monitoring me for MS and other things..finally said NO, I do not think its MS. Now that should be good news but SOMETHING is wrong..and not knowing..well..as you know is hard to take.
After awhile..I gave up wanting an MS DX and just wanted help for my symptoms. That took off some of the pressure. I also sought out this amazing nutritionist who evaluated me for toxins..deficiencies and built up my inflammed, toxic systems. I had good results.
But..I tried other kinds of specialists..2 Rheumies and 2 other kinds of neurologists. They ALL think something is wrong. But..by the Grace of God.. my newest PCP said her mother had a very complex case like mine, sent me to yet another specialist. He knew not only what I had and comfirmed it (an autonomic disorder) but says its usually accompanied by an autoimmune disorder. AND he thinks I have another problem as well. He has the ONLY autonomic testing lab in this region so many neurologists do not have his expertise or knowledge. I thank my PCP for this amazing referral.
Sometimes its NOT MS..but other neuro disorders with or without a name or in my case a couple of disorders.
I also detoxed heavy metals etc out of my system and many of my neuro symptoms disappeared or improved...like fatigue and balance.
Because we live in a polluted world of ingesting and breathing chemicals many many MS type disorders are popping up.
Dont give up.. but like me.. dont box yourself into ONE diagnosis..or only get treated for MS when its maybe another disorder.
Good luck in your search. ASk for spiritual guidance...its works
Warmly, Jan
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Yes I believe in miracles~!!
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