I have been suffering from snf since August 07. Multiple doctors and meds, just like everyone else. Seems to be WAY too little known about causes, treatments etc. It is very difficult to accept that this is the rest of my life. Prednisone has me under control, but now symptoms seem to be extending from legs to arms. neurologist is great, but think they are limited to what everyone else doesnt know about this issue. i believe there has to be a connection to something more.. another underlying issue causing the symptoms. but there is so little research. everything is focused on diabetic neuropathy. someone should focus on those of us with no obvious or evident underlying issues. The more i research this, the more i feel like the outcast. no known cause, so no reason to find out. i think we should join together to encourage more research into the idiopathic neuropathy.. the term almost sounds like we are outcasts.

sorry if i am bringing you down, but i am very frustrated with our system.