Kelly, I'm sorry you are in this predicament.

I don't see how they could expect you to make doctors visits, while living off the measily SSDI payment, and with no medical insurance. I think that would be a very unrealistic expectation . . . but I would call the SSDI people and ask "what am I supposed to do ... ?"

You have MS, and have been accepted for SSDI already. MS is a progressive disease, and they do not normally expect people to "get better" enough to work. Some people do, but not most. They must be fully aware of this kind of dilemma.

Even if your doc/neuro was to say "you need to go on Tysabri @ $100,000 a year", it's not going to happen. In fact, if he suggests you do anything differently, most things would not be feasible due to financial constraints. I don't see the point in visiting the neuro under those circumstances.

There are going to be times that you HAVE to see a doc, like for a UTI or bronchitis, etc., so I would save my $ for those emergencies.

Cherie