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Old 02-21-2009, 02:06 PM
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cyclelops cyclelops is offline
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Join Date: May 2007
Posts: 2,049
15 yr Member
cyclelops cyclelops is offline
Magnate
cyclelops's Avatar
 
Join Date: May 2007
Posts: 2,049
15 yr Member
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Idiopathic simply means they can not find a reason.

There are probably hundreds of diseases that encompass neuropathy....hence, no research on cases that are 'idiopathic'. The effort goes into trying to find if you have one of these hundreds of diseases....that takes years, a lot of money, and a physician willing to go the distance. (most are not).

Idiopathic neuropathy started a search for me that has ended up with no real reason, but, with the knowledge that my immune system is messed up. I have a diagnosis of Sjogren's without the blood work to match, but with a salivary gland biopsy so full of lymphocytes it would not even be scored.

I had Lyme disease, caught in the first month, with an EM rash.

My T cells are messed up.

I have all kinds of -opathies.

I just have to research more and wait for each new symptom to come along....and hope my IVIG works. So far, it has done away with quite a few neuro symptoms, however, I have a boat load of other symptoms to cause misery.

I ,too, get frustrated with the lack of research on neuropathy that is not diabetic. You may find that sites that cover dysautonomia provide some info on PN.

However, there is not likely to be a great deal of research on Idiopathic PN, because for many, it is a symptom of a disease, perhaps one yet not diagnosed or discovered.
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