i do not have diabetes - not B12 deficient. i used to run on a regular basis.. until i could not walk. you are exactly what i mean...there HAS to be a reason.. let us not just accept our doctors diagnosis that this is it and deal with it and the pain. Join me. I will spend my day tomorrow preparing a letter to anyone and everyone I can that will listen. I have a very good talent for composing a compelling statement. i am asking everyone to send me every contact they have who may have some influence in helping us. web sites... email adresses.. whatever.. Please send it to me.. I will add your online names as support if you like (no names, or emails) just the influence from members here.

just an example - one holiday i ordered a book from barnes and noble for my son. he was a tv/film major in college. it was called 1000 movies you must see before you die.. i ordered the book online. it was delivered damaged. i called b&n only to be told that i had to return the damaged book, pay for the return, and in order to receive a new one before the holiday, pay for a second. I was ******. I let it go until the day before. As i was wrapping this damaged book, i knew it was wrong. i composed a letter and researched email addresses for executives at barnes and noble. I found many.. I blasted my complaint to every one. Needless to say, on christmas eve, barnes and noble personally delivered to my home a perfect book. not that this is the same, but hopefully shows my determination.

so send me your contacts.. web sites..emails.. i will do my best to argue for more research on snf and less focus on pain meds.. there must be an underlying cause which has not yet manifested.

Let US be the STARS and fight to be heard.