Monka - I've lost count of how many drs I've seen. I've been in limbo since my 1st CT in '02.
I bet Sally is right, it seems harder to get a dx now than ever. They found brain lesions on my 1st MRI, but other tests don't confirm. So here I sit. They found C spine problems and something in my T spine, but something else is wrong. I may never know what it is.
There are a lot of us who understand the frustration of where you are, although our stories are different. I keep reading and looking for ideas. Sometimes I lay off the drs and tests, sometimes I get back at it. You do what is right for you at the time. It's all you can do.
Do hang around and ask whatever comes to mind - a lot of wise folks here to help you through this.
I wish you the best.