Kansas is closer than Johns Hopkins! Dr. Barohn is awesome, or so I've heard.
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BTW, my neuro said that I only "think" that my legs are weaker because I don't walk on my arms!

It may just be a perception that your legs are the weakest area. And whatever muscles you use most will be the weakest. When I had my breathing crisis in 2005, my talking muscles were spared - I wasn't talking that much during the time before that.