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Old 02-24-2009, 12:21 PM
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erinhermes erinhermes is offline
Senior Member
 
Join Date: Jul 2008
Location: San Antonio
Posts: 1,471
15 yr Member
erinhermes erinhermes is offline
Senior Member
erinhermes's Avatar
 
Join Date: Jul 2008
Location: San Antonio
Posts: 1,471
15 yr Member
Thumbs up Hello MG in MD!

Hpw are you? Are you feeling OK? How long have you had MG? What were your symptoms? Did you have your thymus removed? What meds are you on?

Sorry to be asking so many questions, but I am still a "newbie" - only 11 months since my diagnosis and am trying to get as much info as possible!

Take care!
Erin
Quote:
Originally Posted by MG in MD View Post
Hi, I'm not a doctor, just an old hand. Have had MG and been around MGers for a long time. About the thymus: Many MG patients have an enlarged thymus, but not all. Usually when the thymus is enlarged a neuro will recommend a thymectomy. The surgery will often yield positive results. For some this happens within months, for others within years, for some, nothing. Some neuros recommend a thymectomy in any patient who has a postive MG test, either for the ACHR antibody or from the single fiber emg test. Some docs won't do very young patients or very old patients and others do. It depends on the neurologist, the surgeon, and the institution (hospital) where the patient is being followed for MG, and, of course, on what the patient wants. Good luck to you all. I only visit here now and then and find you to be a very nice group of young (mostly) MG folks. Keep up the good work in supporting each other. It can feel very lonely here in MG land.
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Erin
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