Thread: More Questions
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Old 02-24-2009, 12:23 PM
Scots Kat Scots Kat is offline
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Join Date: Feb 2008
Posts: 175
15 yr Member
Scots Kat Scots Kat is offline
Member
 
Join Date: Feb 2008
Posts: 175
15 yr Member
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Gosh Becky! This is a bit scary actually! Steroids aren't things to muck about with and in my humble opinion (not professional by any stretch) they shouldn't be used to ascertain a diagnosis!! When I was started on my pred (60mg daily) my neuro hosipitalised me for 4 days to see if I had any adverse reactions. I was fine the whole time and ended up making my Christmas Cards and writing report cards in my spare time (it was great - like a retreat or something)! I didn't really feel any different for a few weeks and even went back to the hospital for IVIG about 8 weeks later because I still felt weaker than I liked. Now I LOVE my steroids. I'm down to 40 mg every second day and would like to reduce further, but I'm really not strong enough just yet. I can really tell the difference between my steroid days and my normal days.

I hope you get some good information (and maybe a better doctor) soon! Take care of yourself!
~Kathy
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