Hi legzzalot,
I didn't get the L'Hermittes symptom until 20 years with MS. I was at work and was on the phone a lot. I was tilting my head to the side to hold the phone with my ear and my shoulder (to free up my hands).

I got such a strong shock down my back I thought someone put a 220 volt wire on the back of my neck/shoulder. I turned around to see if someone was behind me doing this. It was the strangest feeling.

All the years prior, since first dx'd, I had had tiny shocks anywhere on my extremities, like a bee bite. Nothing was ever there.

I didn't have a clue it was MS related. I thought I pinched a nerve or something. After that first huge shock, I now get them in my upper left thigh as a tiny shock and a tingling sensation when I or the Neuro bend my head forward and down. I also got the MS Hug around the same time.

At this same 19-20 year mark, my once a year, or occasional exacerbation turned into 4 relapse a year. I saw a MS specialist, instead of my Neuro and it was explained to me that they were MS symptoms and injectable treatments were available instead my usual oral steroids.. That is when I went to Avonex and then Copaxone.

I never used the computer, other than for work purposes, so I didn't know all the symptoms. I was too busy trying to raise my family and work. Then work became too difficult, relapsing so often. I still have had one or two relapses from heck a year.

Due to the the residual damage, I am now labeled SPMS with relapses, some Neuro's still say RRMS . Always the odd duck.

I bet there are plenty of MS symptoms I still don't know about. I hope and pray I never find anymore.