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Old 09-10-2006, 07:27 PM
langansmom langansmom is offline
Junior Member
 
Join Date: Aug 2006
Posts: 61
15 yr Member
langansmom langansmom is offline
Junior Member
 
Join Date: Aug 2006
Posts: 61
15 yr Member
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Jen,

I know I mentioned this to you but wanted to throw it out there for the parents who have had experience with it. You mentioned to me that he doesn't have these tremors during the day even though the dose is the same as the night dose. Anyone have any idea why that would be?

Langan is on a higher dose at night than during the day, so it would make sense if we were seeing it with the higher dose but I don't get seeing it when the only variable that's different is the time. Could it be a lower seizure threshold at night or something? Experts??

(((hugs)))

PS Feel free to check in on our September roll call and introduce yourself and the little man. I know everyone will be excited to have you join the "family" here!
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Wendy, mom to Langan, the love of my life, born 7/19/02. Global delays, intractable seizures, mystery girl. VNS implanted 2/10/06, now on small dose of lamictal and fighting for seizure control, and wife to Jon, the other love of my life!!
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