In some ways I am still fuming about her (the Rheumatologist's) manner and attitude.

I have had a lot of other things going on this past week or two, so haven't been back here to respond. Just had oesophageal manometry done yesterday - and what a horrible test that was, as well as, for the past 24 hours had pH monitoring and got the tube out this morning.

Earlier last week I visited my Endocrinologist for my regular visit and she was quite excited that the Rheumatologist had written to her and said that she thought I had Fibro! I think I must have looked a bit disgusted as she asked me what was wrong. I told her about the off handed way that the Rheumy said to me "I didn't really want to raise this but I think you may have Fibromyalgia....." and my Endo said "well that wasn't a good way of approaching it was it...it sounds like she doesn't really believe in it". I had to agree with her.

Anyway I think the Endo also thinks it is a high probability that I do have Fibro and she said to me "you know it IS a real condition - just a difficult one to diagnose". In her handbag she had a brochure to give me for a seminar day in March on Fibromyalgia, which she recommended that I go to. She's a real keeper!

My General Physician, who I will see again next week, does not believe I have Fibromyalgia but some other exotic immunoglobulin deficiency or autoimmune issue. This guy has been described as "like a dog with a bone" when trying to find the cause of people's problems. He is also liaising with all the other specialists.

My General Practitioner just ignores all reference as to why I have joint & muscle pain and 26 other symptoms! He did diagnose Peripheral Neuropathy in 2007. Has not otherwise been much help to me and everything is "I am at my wits end".

My Pulmonologist (a lung transplant Surgeon/Professor) has focussed on diagnosing and treating my lung condition and he also thinks I have an immune deficiency. I was diagnosed in September 2008 with Bronchiectasis of both lungs. He is excellent!

My Upper GI surgeon diagnosed Gastroparesis last month (Jan 2009) and is now investigating GORD/GERD. Very thorough and meticulous diagnostician - I think I trust this guy!

So in many ways I am in good hands. In some ways I feel way better than I did 12 months ago (due now to correct management of lungs and stomach problems), although many other things are persisting and other new symptoms are emerging....and each day varies somewhat, energy-wise.

Whether it is Fibromyalgia or not I cannot say for sure, although a lot of my symptoms do check off as being consistent.