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Old 02-25-2009, 01:36 AM
OhSheila OhSheila is offline
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Join Date: Feb 2009
Posts: 4
15 yr Member
OhSheila OhSheila is offline
New Member
 
Join Date: Feb 2009
Posts: 4
15 yr Member
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I have trigeminal neuralgia and my husband has glossopharyngeal neuralgia. What are the odds - lol.

I always tell people it's that darn transformer box in our backyard causing the neurological problems, haha. I don't believe any one culprit brought this on, nor do I believe any series of events. Neither one of us has had any car accidents or anything traumatic etc. Both of our cases were clearly spontaneous. However, in my research of our small neighborhood I have found 6 other trigeminal (that I know personally) within a 5 mile radius?????? Coincidence??

My husband was much worse off than me. I say "was" because he had microvascular decompression surgery in 2006. Dr. Jho in Pittsburgh is a miracle worker!!! My husband has his life back!!!! Since his surgery he hasn't taken one tegretol and hasn't had one attack, not one!! My husband would be on the floor in pain sometimes 20-30 times a day. Our children finally know their father.

My trigeminal isn't quite as severe. I have been diagnosed with migraine headaches, cluster headaches, and every kind of headache known to man. It took the endodontist to finally figure out that it was trigeminal. Neurontin works well for me, for now. If this does progress past the drugs I will definitely contact Dr. Jho!!
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"Thanks for this!" says:
pono (03-08-2009)