Hey, I was just thinking of that long, drawn out dissertation I gave you all on my symptoms and realized I had been using those steroid creams on the rash for some time prior to the neuro giving me the oral steroids. Do you think maybe that's why I get such an immediate boost from the oral med????
HUMMMMMM!
I have F/U with the neurosurgeon that did my coil today. I'm going to grill them the little complication I had following the procedure. Something about that procedure triggered this, I know in my gut.
This has been so helpful to bounce info. Thanks so much to all of you!!!
Becky
Quote:
Originally Posted by erinhermes
I felt better after a few days - BUT I was also on IV IG at the same time. It was during my last real crisis, so I was on roids, mestinon and had that IV IG flowing into my veins as fast at they could give it to me........
I was started @ 10 mgs, doubled to 20 the 2nd day and by the 8th day I was at 80 mgs - @ 80 I felt GREAT!
Sounds like your neuro has things backwards........
I was told by my onc and neuro that steroids can initially cause pretty serious weakness - especially in the legs - learned that the hard way - got stuck - and that's why I was started on everything while still on the hospital.........
Hope you get some relief soon! 
Erin |