Originally Posted by LizaJane

The identifying information came in on the organism in my sinuses. It's called mycobacterium cholanae/abscessa, and the recommendation is Doxycycline, Amikacin, and Biaxin for 3 - 6 months. The organisms were grown at Mayo, and in Dallas, but apparently Mayo has never had this in one of its own patients. My doc says he's gotten it in 25 cases, out of 2000 or more patients.

He says the decision about what to do is totally NOT an emergency, so I should just think about it. He had no recommendations for people to talk to, but said whoever I come up with is fine; it's just that no one has experience with this.