BabyJayne... I relate to your symptoms very much. I take meds, but I have tried many that make TLE worse, so it is difficult to trust. Truthfully, I was diagnosed with bipolar d/o w/psychotic features up until a few years ago when I KNEW it was wrong, the meds, the treatment, etc. I went to a neurologist, who is an epileptologist and he's been my safety net.
But, people around me often think I am a hypochondriac, making up bizarre symptoms - because they don't "see" me going through them. It's not easy. My worst outcome is that I no longer can work, which locks me into my head all the more.... isolation, sterile environment, loss of self-esteem related to work and usefulness in society.
Thanks for speaking up. Cynthia in MA
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Originally Posted by babyjayne
Hi there!
It sounds like you feel very alone so I thought I'd log in (first message only just joined) and tell you a bit about myself!
I was diagnosed with TLE at the end of Sept 07 after like you years and years of funny episodes. I have different symptoms to you but with several abnormal EEG's and an MRI which showed ischaemia on the Left T Lobe the diagnosis was given. I am supposed to be taking Lamictal but havent summoned up the courage yet as I react badly to meds. I've been on anti depressants for years and also have vertigo attacks. They are so terrifying that I daren't risk anything making them worse.
The difficulty I have is that no-one seems to be able to explain which of my symptoms are E related. Therefore I dont know what improvement I would be looking for if I took the meds! 
I get weird visual stuff like objects flying towards me really fast, i.e. if I'm washing up the bowl seems to come up to meet me at speed ...weird I know!
I get dizzy spells with shivering and also sudden intense fear accompanied by feeling absolutely freezing. Also since childhood I've had the dejavu thing.
Because I got the depression and the accompanying side effects of their meds it has made me very fearful, and I dont trust meds very easily!
Sorry to rabbit on but I feel for you and if you can relate to any of this or can explain to me what you think the main symptoms are I would be really grateful 
babyjayne |