Quote:
Originally Posted by jdickson
Is it possible that that this could be linked to an autoimmune disease or some type of disease that causes malabsorption? Celiac Disease, etc... malabsorption of nutrients can cause a variety of problems such as bone softness, etc...
Might be worth looking into -
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yes that is a possibility perhaps. she has had a course of ivig and immunosuppresive steroids which did not seem to help.
I have put some detailed information at
www.helpher.net if anyone can take a look and maybe pass it on . maybe someone knows something.
ella is very weak now and is having more and more repiratory difficulties. she has lost so very much now.