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Old 02-25-2009, 07:56 PM
Debbie D's Avatar
Debbie D Debbie D is offline
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Join Date: Jan 2008
Location: Naperville IL
Posts: 5,169
15 yr Member
Debbie D Debbie D is offline
Elder
Debbie D's Avatar
 
Join Date: Jan 2008
Location: Naperville IL
Posts: 5,169
15 yr Member
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Barb,
The first month, the neuro had me do a 3 day IVSM with a 15 day oral taper of oral prednisone. But I react so bad to the oral that I called him and they discontinued the oral.
So they decided to give me a once a month IVSM of increased SM without the oral taper. I notice that the IV meds last about 2 weeks before the spasms return in full force, and I have bad bladder probs again. I get so stiff that I finally got the cane out of its hiding place, because I just couldn't walk well at all...and I am so stiff and bent that I look like my 87 yr. old FIL with Parkinson's.
These spasms are bad...and as much as I hate being on the steroids, what with the metallic taste and the headache, it's such a relief to be able to walk like a "normal" person and not worry about not being close to my bathroom.
I know that the steroids are probably taking a toll...I worry about it, esp since the neuro hasn't talked to me at all about the effects.
I sure hope that you get to feeling a bit better...take care...spring break's coming soon!!
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"Thanks for this!" says:
barb02 (02-25-2009), ewizabeth (02-26-2009)