Thank you so much Erin. I'm having a hard time waiting for my biopsy results right now. I have this test that's supposed to show what's wrong with me and I have to wait for the results.

My weakness is getting worse. Now instead of just having spells, I'm just weaker in general. If I get up and try to fix a meal I need a nap. Ugh I hate this, I needed to hear that once I have an answer it will get better.

Any time I get up and walk or do anything I feel like my neck muscles are weak and I need to rest my head. Since yesterday if I turn my head to one side or the other, tilt my head down or lie on my side it feels like my throat sticks closed.

I see my primary doctor on Friday to have the knots cut on my stitches and I will tell him about that then to make sure he doesn't want to look into it further.

Since the beginning of the month I have been feeling like it takes more work to breath. I told the doctor that did the biopsy and he wasn't concerned. I know he heard me but he didn't even respond to it. I'm scared and I just don't know what to do. At night when I'm the most worn out I try to relax and go to sleep and notice that there have been several times where if I'm not concentrating on breathing I feel like I almost stop. I don't feel out of breath, I feel like I have to work hard to take a normal breath, not breathing any deeper or faster just working harder. Does that make sense?

I just can't afford to keep going to doctors and having tests and racking up the bills. If this test doesn't show a result I don't think I can even try to look for the answer anymore. I will just have to deal with whatever is wrong with me and go on with life. I feel like a whiner, most people aren't at the doctor one quarter of the amount of time that I am. I'm so sick of being looked at like it's all in my head, these doctors are starting to make me think that maybe it is. Maybe there isn't anything wrong with me as far as a muscle problem and it is anxiety.

I don't really feel like it's anxiety, I honestly believe that there is some kind of muscle disease here. I just don't know where else to turn. I feel like I've exhausted my resources and there's no where else to go.

Okay sorry to have ranted, especially when you are doing so well. That is so great that you are feeling so wonderful. Sorry again for the venting and ranting I needed to get that out.

I hope your IV IG goes well along with the step down on steroids. I hate steroids, I've had two different treatments of IV steroids (for three days each) followed by a two week tapper on Prednison but they think I'm allergic to steroids now so no more of that for MS flares anymore. I would hate to be on that high of a dose of steroids all the time, hopefully the step down will start helping with the swelling for you. Anyway, congrats on the good day, can't wait to hear how the IV IG goes and how you do on the lower dose of steroids.

Kristie