I think the waiting is just getting to me. The doctor I normally see is so compassionate, I have a hard time understanding her, but she is great. She is not the doctor I saw for the biopsy though, I saw her boss.
Just a couple more weeks and I'll know the results. I think this test will say what is wrong with me, I just don't want to get my hopes up to be disappointed again.
Oh and I was wondering, when you have breathing problems, do you ever get a pressure pain in your head?
My primary doctor also cares, he knows it's something he just doesn't know what. That's why he has sent me to specialists.
I don't think we could really afford to keep looking for an answer if we don't get it now. The medical debt is tremendous already. That and I really don't want to go through any more tests. If a doctor is going to diagnose me they are going to do it with the tests that have already been done.
I want to thank you all again for being here. It helps so much to have someone who understands. My husband is so supportive and he tries so hard but I can tell he is scared too (poor guy has already watched me go through three near death experiences) and I know more about this than he does.
Okay I can't think right now, thanks again.
Kristie
Quote:
Originally Posted by erinhermes
Honey, it is not in your head! It really isn't! I know what it is like to be afraid to fall asleep - not knowing if I would wake up. I know what it is like to have dr's tell me I'm "fine" when I knew I wasn't.
MY own FAMILY thought I just wanted attention or that b/c I smoked I deserved this. No one deserves MG. No one!
When I was finally diagnosed, I was depressed for quite a while and scared all the time. After my first plasma exchange I screamed @ my hubby for 3 days straight ( I was kind of tricked into going my Mike and my onc). After that, I started on Paxil and stated to feel less afraid. I kept my cell phone by me all the time and wouldn't leave my home without my meds.
MG is a tricky disease and unfotunately MOST docs have lost their humanity. If we were MEN complaining of these problems, I think we would be taken more seriously........
The breathing is a serious thing. I am stunned that your idiot doc didn't cae enough to do anything........most are a joke! I saw "specialist" after "specialist" to try and find out why I always sounded drunk, wobbled while I walked and had problems swallowing.....they all said it was TMJ (which I do have) and bad sinuses (which I also have).......
There has got to be some way to get your proper diagnosis. You can't give up! 
My head and neck also gave me problems - sometimes I just could not lift it. Breathing was also a major issue. I thought I was crazy. Turns out, I was just really, really sick..........
It sounds like you really need another doctor. You need MEDICAL help. You need someone to LISTEN to you! You live in the DFW area, right? My neuro is here on SA.......he really is the best. If you come down and stay in SA, you are welcome to stay @ my house. We always have room for more!
Once you get your proper diagnosis, you will feel so much better! And you are not a whiner! It is scary when things that we once took for granted are now taken away from us and we have no idea why.........
My neuro's number is 210-949-1913. His name is Badreldin Ibrahim - and he listens! WOW! I gave him my list o' symptoms and he diagnosed me within 5 minutes!
Hang in there! Don't give up! This is NOT in your head! It isn't! You are weak b/c you are sick...............not mental
Let me know if you want to come down and stay with us.......We have 5 dogs and 2 cats and 3 kids - needless to say it is never dull here! But once Dr I gives you your diagnosis, you can find a great neuro in your area and get the meds you need! 
Erin |