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Elder
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Join Date: Jan 2008
Location: Vermont
Posts: 6,726
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Elder
Join Date: Jan 2008
Location: Vermont
Posts: 6,726
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Hi and welcome. Hopefully there will be folks here who can help you. My late sister-in-law had myatonic dystrophy, as well as at least one of her sisters. My niece has it, as does her 19-year-old daughter.
If you don't find the information/support you need here (which you probably will!) I will contact my niece and see if she might be interested in getting in touch with you. She is a helpful and generous soul, so it would surprise me if she were not so inclined.
Wishing the best for you during a difficult time.
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**My flesh and my heart may fail, but God is the strength of my heart and my portion forever. (Psalm 73:26)
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