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Old 02-26-2009, 07:37 AM
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Blessings2You Blessings2You is offline
Elder
 
Join Date: Jan 2008
Location: Vermont
Posts: 6,726
15 yr Member
Blessings2You Blessings2You is offline
Elder
Blessings2You's Avatar
 
Join Date: Jan 2008
Location: Vermont
Posts: 6,726
15 yr Member
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Hi and welcome. Hopefully there will be folks here who can help you. My late sister-in-law had myatonic dystrophy, as well as at least one of her sisters. My niece has it, as does her 19-year-old daughter.

If you don't find the information/support you need here (which you probably will!) I will contact my niece and see if she might be interested in getting in touch with you. She is a helpful and generous soul, so it would surprise me if she were not so inclined.

Wishing the best for you during a difficult time.
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