My mom watches that show. It just takes that one doctor who will look outside of the box and give you the right dx. I have seen so many docs in so many states with so many diagnostic tests I have no idea any more. I am young when I got PN I was 28 and rsd in legs/ear/eyes. I also have other smaller conditions like a smokers cough but I never smoked that are basically way before my time. Like if I hear you are too young for it and then it happens I will scream.There is no reason to have developed these conditions though I had a past of anorexia but no doctor sees a connection and I agree getting the word out is key. The problem with show like the one stated or Dr Oz for Oprah is many of us are not quick fixes so to speak and that makes a better story for the doctors and getting more people to come to them.
In my eyes I think doctors need to look outside of the box but also try to connect things instead of shove patients off or just look what is in front of them. I always go with my binder of records and written reports but I often wonder if I asked them to tell me what they thought before if a new approach or thought would come into play rather then just going along with what others have said. I keep reminding myself it just takes that one doctor or one treatment that helps me hold to hope