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Old 02-26-2009, 03:14 PM
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erinhermes erinhermes is offline
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Join Date: Jul 2008
Location: San Antonio
Posts: 1,471
15 yr Member
erinhermes erinhermes is offline
Senior Member
erinhermes's Avatar
 
Join Date: Jul 2008
Location: San Antonio
Posts: 1,471
15 yr Member
Thumbs up Yes! Yes! Yes!

Yes I did! If you look in the mirror when your eyes/hurt and are having other problems, you may want to brace yourself........I did it @ my son's school and my left eye was waaaaaaaaay wonky! It was soooooo off center! It scared the bejeebies out of me!

I suffered from constant headaches toward the end - right before my dx - every day - all day.........my eyes were "swimming" around in my head. I put a cold compress on them now. My neuro gave me his soda can to rest my eyes and they went back to normal for a few minutes - it was great!

Wating is the hardest part! The not knowing is the hardest part, as well........hang in there! They are going to diagnose you and get you back to yourself in no time. It won't be overnight, but it will happen! You gotta believe that!

From all I've read, you are really tough and brave -you can do this!

Erin
Quote:
Originally Posted by nemsmom View Post
I think the waiting is just getting to me. The doctor I normally see is so compassionate, I have a hard time understanding her, but she is great. She is not the doctor I saw for the biopsy though, I saw her boss.

Just a couple more weeks and I'll know the results. I think this test will say what is wrong with me, I just don't want to get my hopes up to be disappointed again.

Oh and I was wondering, when you have breathing problems, do you ever get a pressure pain in your head?

My primary doctor also cares, he knows it's something he just doesn't know what. That's why he has sent me to specialists.

I don't think we could really afford to keep looking for an answer if we don't get it now. The medical debt is tremendous already. That and I really don't want to go through any more tests. If a doctor is going to diagnose me they are going to do it with the tests that have already been done.

I want to thank you all again for being here. It helps so much to have someone who understands. My husband is so supportive and he tries so hard but I can tell he is scared too (poor guy has already watched me go through three near death experiences) and I know more about this than he does.

Okay I can't think right now, thanks again.

Kristie
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