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Senior Member
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Join Date: Jul 2008
Location: San Antonio
Posts: 1,471
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Senior Member
Join Date: Jul 2008
Location: San Antonio
Posts: 1,471
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Oh, Kristie, I am so sorry!
Oh, sweetie! I am so sorry to hear you are feeling poorly...........
You just rest and get to the hospital if you feel like you can't breathe! Also, please, please, please do not drink anything carbonated! It may - only may- cause you to choke a little bit. I am not trying to scare you. I worry about you, though.
We are in the same boat. Last year I was sooooooo sick and weak! It does get better! It was so hard having no one listen to me.........
Do you have really low blood pressure? Mine is always really low - 90/60 or so....I don't know if it is MG related or what...all I know is that I can't stand it! My 16 yr old son, Devon has HIGH blood pressure 140/80 - and that really scares me. He has gone through so much with this stupid disease.
I feel so stupid being afraid of needles......after all I've enough blood work....but they still freak me out! The worst part is the PICC line, but this guy Jerry is the MASTER! He got it in in under 5 minutes! 5 minutes!
Feel better and please,please let your family take care of you! Just try and rest!
 Erin
Quote:
Originally Posted by nemsmom
I'm so glad they're better.
You know last night wasn't too bad. I was weak, but not my worst. Today though I haven't been able to do anything. I'm just too weak to do anything. Anytime I get up it gets harder to breath. As long as I sit I'm okay.
I didn't get to do the overnight oximetry test last night. My doc wants my husband to take my blood pressure when I'm having a very hard time breathing and do the test that night. I'm sure tonight will be the night with how I'm feeling right now.
That's so great that the nurses are so good to you at the hospital, it makes things much easier. It's not silly to be afraid of needles. I have to give myself a shot three times a week (for just over a year now) and I still can't handle the sight of a needle puncturing skin. It makes me sick to my stomach. I can't even stand to see it on TV.
It's funny I'm deficient on vitamin D so they say I should be in the sun more, but the sun sucks my energy in less than five minutes. I can literally feel the energy drain from me. I hope you get to enjoy a few minutes without that effect.
I'm sure you're getting excited to go get more energy again. I hope it all goes smoothly for you.
Kristie |
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Erin
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