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Member
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Join Date: Aug 2006
Location: Brooklyn, NY
Posts: 805
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Member
Join Date: Aug 2006
Location: Brooklyn, NY
Posts: 805
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contaminant?
I want to add a few notes on this thing about the atypical mycobacterium.
Most of the doctors I have seen over the past year are not at all sure it is of any significance at all. My sinus guy has been finding it in a lot of people, but he is the only person in the country writing about this or treating it, that I can tell. My other doctors tell me they are quite sure that if everyone was cultured for these atypicals, we'd find out that much of the population is positive. Not necessarily that everyone actually has it in their bodies, but that it's almost impossible to keep all instruments and testing materials clean of it. It's a ubiquitous organism, present in all drinking water, so we all ingest it daily. It is likely that many of us are colonized, without symptoms, and it is likely that when we get tested, unless all the materials in the doctor's office are tested, that contamination is high. That is because the organism is so darn hard to kill, including by normal disinfection. It's only killed by autoclaving, so it's on surfaces everywhere.
For me, I was sick, but it's now clear that I have had lyme for,maybe 20 years. My immune system is suppressed, and I have a lot of myofascial pain and inflammation. All these things set me up for sinus inflammation, but not necessarily from the mycobacterium, or even from fungi.
I don't know what to recommend about netty pots anymore. It seems prudent to use sterile saline, but then again, I was told that everytime we take a shower we inhale loads of mycobacterium, and this is how people with cystic fibrosis get this organism (they get lung infecgtions from it). So avoiding tap water in a netty pot might not change our exposure to these organisms at all.
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LizaJane
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--- LYME neuropathy diagnosed in 2009; considered "idiopathic" neuropathy 1996 - 2009
---s/p laminectomy and fusion L3/4/5 Feb 2006 for a synovial spinal cyst
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