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Senior Member
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Join Date: Apr 2007
Posts: 1,900
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Senior Member
Join Date: Apr 2007
Posts: 1,900
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Hi Kefrin! My friend , her two daughters and her sister all have myotonic dystrophy...from a young age for her daughters and no one is sure about when the onset for the adults was. My friend does Ok however she gets tired easy and sleeps alot at times. Her oldest daughter has alot of difficulties mentally and her youngest was not supposed to live any more than a few days. She had some deformities in her mouth and could not suck when she was little...she was fed through a g-tube for months. She has more severe mental difficulties than her sister and was born with club feet.
Even though they have alot of challenges they are doing Ok. I cannot tell you alot about the disease....I am sure you already know a fair bit if you are living with it! Pop in and share about yourself...any advice etc...I can pass on. It is good for us all to share what we can!!
Take Care and see you around!!
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LOVE DORRIE!!
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