I'm so sorry to hear this .

You might want to take a look at the Not Celiac page in the gluten file. It has these that can cause symptoms like celiac disease, singly or co-existing. Maybe you will see something they haven't thought of.

I just don't even know what to suggest, except to perhaps take a stab with an environmental/integrative type doc. Sounds like your current doc is still looking, but I'm sorry they haven't been able to pinpoint anything yet.

Cara