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Senior Member
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Join Date: Jul 2008
Location: San Antonio
Posts: 1,471
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Senior Member
Join Date: Jul 2008
Location: San Antonio
Posts: 1,471
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Hello again!
I am so sorry your brother is having to go through this.....MG is really, really scary!
I was started on roids when I was in the hospital, b/c I was told that they can make you really really weak initially. I was on Mestinon, but it wasn't enough. I still had a crisis.
When I started on the roids, my legs were really weak. I got stuck outside (after I was released from the hosp)........
it does sound like you need someone who will keep a closer eye on your brother. Have the docs recommended a thymectomy? Is he still in the hospital?
Please feel free to contact me anytime! erinhermes@hotmail.com
Erin
Quote:
Originally Posted by matt's sis
Hello everyone...My 23-year old brother was just diagnosed with MG in November 2008. He was started on Mestinon, and a chest CT revealed an enlarged thymus gland. He had thymectomy on 2/2/09. He did well, and was d/c'd home on 2/5/09. He started having issues swallowing, and choked on food. He was readmitted on 2/13/09, and thought to have had a cholinergic crisis. He did well and was d/c'd on the Mestinon and Prednisone 10 mg. He started having issues again with difficulty eating and swallowing, and was readmitted on 2/23/09. The neuro decided to start high-dose steroids, but instead of improving, he got worse---weaker and weaker, and has now weakness in arms and legs. He couldn't even hold up his head and walk! Neuro tapered the steroids and he got 2 rounds of IVIg. It's been 2 days since the last IVIg, and showing a little improvement, but still weakness in arms and legs.....how long did it take you to feel improvement after IVIg? I just my brother to get better! It's ben so frustrating!!!
Thanks
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Erin
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