Kristie, I'm sorry you don't have answers yet. It can really be frustrating. But sometimes diseases are hard to find.

You mentioned in a previous post that you saw an endocrinologist. Do you mind my asking - what tests did they do? Did they do aldosterone and renin plus a 24-hour urine (sodium, aldosterone, renin, cortisol and osmolality)? Aldosteronism has been implicated as a mechanism in POTS and can cause periodic paralysis (which you also mentioned). Not all endocrinologists do that kind of thorough testing.

Do you know what enzyme was off? Was it creatine kinase (creatinine phosphokinase). If so, did they do any mitochondrial testing in your muscle biopsy?

You said you were on a lot of meds. Could any of those meds alter the results of the EMG's?

Sorry about all the questions but that's what I do. I have found in the past that if I don't dig a little deeper with doctors, I sometimes don't get answers. And since a record of a test was kept from me, I make sure I get copies of ALL my medical records. Sometimes doctors don't even tell you if a test was a "little" off and can dismiss it.

I should note that O2 stats in MG don't always "tank" until late in the game, in case you have MG.

Whatever is going on, I hope you can get some answers fairly soon. Just try to take good care of yourself in the meantime. Do something fun, to get your mind off of it all. I know, it's easier to say than to do. Music always helps me.

Annie