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Old 03-05-2009, 12:07 AM
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lady_express_44 lady_express_44 is offline
Grand Magnate
 
Join Date: Aug 2006
Location: Vancouver, Canada
Posts: 3,300
15 yr Member
lady_express_44 lady_express_44 is offline
Grand Magnate
lady_express_44's Avatar
 
Join Date: Aug 2006
Location: Vancouver, Canada
Posts: 3,300
15 yr Member
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Thanks for your support.

You are right, Koala, and I have thought that way all the way through.

At first I thought a virus (like meningitis), and took her to a local Hospital. She had no fever or other signs of a virus, so they ruled that out right away and sent us home with the instructions that "if she didn't improve over the weekend, bring her back."

I happened to have a MS Specialist appt on Monday, and mentioned to her my daughter's symptoms. She jumped on it RIGHT away, and said "GET HER INTO CHILDREN'S HOSPITAL NOW!!". I took her the next day.

There was a team of specialists that assessed her all day; 4 doctors in all. The pediatrician neurologist gave me her business card at the end and said "I want to personally follow your daughter". Please call me next week to let me know if things are not better.

That's how it all started, and things have only gotten worse since then. I've been researching like mad to see if her symptoms fit anything else at all . . . and had come to the conclusion that fibromyalgia fit quite nicely. Her doctor actually got very annoyed at me last week, and told me to "stop looking on the internet", "you know these things take time, hopefully a LONG time". That was the first time I seriously considered MS.

She hasn't been at school for more than a few hours over the past three weeks. The pediatrician neuro said it has to be dealt with now.

I'm taking her for the MRI tomorrow, and her dad is taking her for the Spinal Tap. I can't handle that part.

Thanks again,
Cherie
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I am not a Neurologist, Physician, Nurse, or Hairdresser ... but I have learned that it is not such a great idea to give oneself a haircut after three margaritas
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