I agree with Porkette. I know that seeing an epileptologist at an Epilepsy Treatment Center can feel overwhelming when you're fighting other conditions. However, health issues often become complicated by epilepsy & treatment medicine/s. The more medicines you take, the more confusing it becomes .

I got lucky in that my second neurologist told me that he could not help me gain control of my seizures. He admitted that he was simply at a loss - didn't have enough experience with epilepsy to be able to treat me. My neurologist was a good doctor and a decent human being. Many doctors are unwilling to admit that they don't have the answer, or that they cannot help. My neurologist recommended that I go to Mayo Clinic or Stanford, to see an epileptologist for treatment. I followed his advice and went to Mayo Clinic (which is pretty convenient now that I live so close ). That is when I found out that my phenobarbital dosage and dependence is considerably high.

Hugs to you Dave - I hope that your pain eases soon !!
Shez