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Old 03-05-2009, 07:50 AM
MominPainRSD MominPainRSD is offline
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Join Date: Dec 2008
Posts: 264
15 yr Member
MominPainRSD MominPainRSD is offline
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Join Date: Dec 2008
Posts: 264
15 yr Member
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Quote:
Originally Posted by msdrea83 View Post
well... i reached my 2 month mark of being pain and drug free the beginning of last week... and....... it came back...i started getting the lovely burning pain back in my left hand and wrist. thank god its not back in both arms and my foot, and is just in my hand and wrist. it isn't as intense as it was pre-ketamine infusion. i went to my pm right away and got some fentynol patches. i don't want to be taking ketamine orally while i'm in school full time- i need to be able to think clearly 24/7 in order to do well with a full load. the patches are helping. and when i'm able to afford having another ketamine infusion i will definately have another- i never reached the same state during the infusion as the doctor's other patients because of my tolerance so my dose will be increased from the first one i had. until then, i'm keeping my fingers crossed it doesn't spread. the doc in la that did the infusion wants me to call one of the docs he works with up here and see if he'll do some blocks and some other treatment on the nerves in my elbow until i'm able to get another infusion. i guess treat this as if i was getting rsd for the first time again.... try to stop it from getting worse before it does get worse. but ya. ... the last 2 months were amazing! and its still great for it to just be in my hand/wrist and at a lower intensity vs almost in every limb and raging.
Oh Andrea......I am SO very sorry to hear of your returning symptoms. You KNOW we were ALL rooting for you......so hoping that the last treatment would have been the end of your ordeal with this monster. Please know that my heart goes out to you. I am glad you are being so proactive about getting blocks and treatment right away. Hopefully it will not spread beyond where it has already begun again. Was that the site where it all originally started in the first place??

I applaud your determination to go to school in spite of your pain....including limiting your meds so that you have a clear mind. You have tremendous ambition and drive that will serve you well in your life, regardless of what path you choose in your career. You have so much to be proud of and we all rejoice with you in your success and grieve with you with your continued pain. Please keep us posted on how you're doing and what the doctors do to maintain what remission you still have.
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