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Old 03-05-2009, 02:49 PM
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DianaA DianaA is offline
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Join Date: Jun 2007
Posts: 329
15 yr Member
DianaA DianaA is offline
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Join Date: Jun 2007
Posts: 329
15 yr Member
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Quote:
Originally Posted by msdrea83 View Post
well... i reached my 2 month mark of being pain and drug free the beginning of last week... and....... it came back...i started getting the lovely burning pain back in my left hand and wrist. thank god its not back in both arms and my foot, and is just in my hand and wrist. it isn't as intense as it was pre-ketamine infusion. i went to my pm right away and got some fentynol patches. i don't want to be taking ketamine orally while i'm in school full time- i need to be able to think clearly 24/7 in order to do well with a full load. the patches are helping. and when i'm able to afford having another ketamine infusion i will definately have another- i never reached the same state during the infusion as the doctor's other patients because of my tolerance so my dose will be increased from the first one i had. until then, i'm keeping my fingers crossed it doesn't spread. the doc in la that did the infusion wants me to call one of the docs he works with up here and see if he'll do some blocks and some other treatment on the nerves in my elbow until i'm able to get another infusion. i guess treat this as if i was getting rsd for the first time again.... try to stop it from getting worse before it does get worse. but ya. ... the last 2 months were amazing! and its still great for it to just be in my hand/wrist and at a lower intensity vs almost in every limb and raging.
Well, I am sorry to read this post, girl. I was wondering why I haven't heard from you lately. I did notice a whole lot of positive here! I know what it is like to have a vacation from the pain and isn't it amazing to enjoy those days to the fullest!
It sounds like you are on top of the game here. Please keep me posted as to your progress. It was good to see a post from you, I have really been wondering where you were. But, not the answer I was looking for. I'll drop a pm or IM tonight.
I had such a hard time getting off those darn patches. But, they did help. All the best to you. Ill talk to you soon. Di
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