I agree w/others, not to jump to any conclusions, like that it must be ms or anything else. But you asked who had your symptoms, and what dx they had, so...

I will say that I have some of your symptoms and my docs thought I had ms (I have brain lesions but no other tests confirm ms) - they still do then don't at times. I was dx'd with C spine problems and syringomyelia.

When they first found the syrinx, the neuro did not think that could contribute to my sx - muscle pain in shoulders, upper back, legs, joint pain in hips. They said it might be fibro.

My pain drs do think the syrinx is what's causing those sx though. It's a rare disorder, so I don't know if anyone is really sure, but I kind of think they are right (the pain drs, that is).

Whether the syrinx has anything to do with the extreme fatigue or not is up in the air.

Just so you know, I was tested and do not have lymes, lupus, or RA, among other things.