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Old 03-06-2009, 12:40 PM
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DizzyLizzy DizzyLizzy is offline
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Join Date: Dec 2008
Location: Minnesota
Posts: 222
15 yr Member
DizzyLizzy DizzyLizzy is offline
Member
DizzyLizzy's Avatar
 
Join Date: Dec 2008
Location: Minnesota
Posts: 222
15 yr Member
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Quote:
Originally Posted by PolarExpress View Post
Hi Amy..
I live near Minneapolis, too (Red Wing)..Which neuro have you seen? My first dx was PPMS, but was put on Rebif, than Copaxone. I'm glad, because after several years I had my first flare a couple months ago (first one I'm sure of, anyway), and this happened a year after I stopped Copaxone. MS is so unpredictable, my neuro really helped me out by not listing it as progressive in my records as insurance won't pay for DMD's for that.
I have seen two Dr.s from the Minneapolis Clinic of Neurology. Dr. Murphy at the Coon Rapids Clinic. And I have seen Dr. Gary Birnbaum at the Golden Valley Clinic.

I want to find a Dr. that will listen to me, explain things to me and basically have a "good" bedside manner. I don't think that I am asking too much..am I?
Do you have any Dr suggestions for me?

Why in the world would insurance not help for PPMS, but they will for RRMS? That is insane!
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Amy



DO WHAT makes you happy, Be with WHO makes you smile, Laugh as much as you breathe & LOVE as LONG as you LIVE




.

July 2006- First significant SXs, suspect it started back in mid 1990's
1/21/09 - Positive MS Dx
2/17/09 - 2nd Positive MS Dx
4/2/09 - MS Dx 3rd Neuro - finally found the Dr. who has the characteristics I was looking for
.

10/8/09-optic neuritis flair, Cog Fog, chronic headaches
5/4/09 - 12/15/09 Copaxone
1/15/2010 - First Tysabri Infusion - 3/25/16 - Last Tysabri Infusion
3/3/16 - signed the documents to start the Lemtrada journey
4/25/16. Lemtrada begins.
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