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Old 03-06-2009, 07:53 PM
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lady_express_44 lady_express_44 is offline
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Join Date: Aug 2006
Location: Vancouver, Canada
Posts: 3,300
15 yr Member
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Quote:
Originally Posted by Bearygood View Post
Cherie and Aarcyn, I have seen 2 cases of someone being dxed with PPMS right off the bat on another board. I always thought that was strange.
Yeah, it happens . . . and sometimes they are wrong too.

This just doesn't seem to add up to PPMS though, does it?

His "gut feeling" is PPMS . . . based on what criteria? Amy has lots of "enhancing brain lesions", and mentioned nothing about spinal lesions. She has not progressed significantly in 3 yrs . . . and he wants to start her on Copaxone.

Did he do a LP, and how many O-bands were there?

Have you had relapses and remissions (worse, then better periods)? Are you accumulating obvious disability between progression?

Why couldn't this just as easily be "benign" MS . . . at least based on her MS-experience to date?

I just don't see where he is getting his "gut feeling" from . . . but it doesn't sound like he is communicating things to Amy very well either though. That doesn't mean to say that I think he is necessarily wrong . . . I just don't get yet what he is basing his assessment on.

Cherie
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