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Old 03-06-2009, 11:39 PM
chamade chamade is offline
Junior Member
 
Join Date: Sep 2008
Location: San Francisco, CA
Posts: 22
15 yr Member
chamade chamade is offline
Junior Member
 
Join Date: Sep 2008
Location: San Francisco, CA
Posts: 22
15 yr Member
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Hey there, I also repeated my NCV/EMG a few weeks ago at the UCSF and it came back normal again after 2 years. BUT...my ACE serum levels came back high which points at Sarcoidosis, which can cause small fiber neuropathy (undetectable on EMG/NCV). I am having some tests done to confirm Sarcoidosis as my diagnosis so that we may start treatment.

Are you doing anything else besides EMG/NCV...blood tests for specific immune diseases, skin biopsy to check for small fiber neuropathy etc.? Do you have any other health issues besides neuropathy? That could point to a diagnosis/tests.

Keep going, something will eventually come back positive.
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