Hi jaynurse05,

Welcome to our little neurotalk site. I feel terrible that you have had conflicting results, there is nothing worse when all you want is a definitive answer. I was diagnosed about 5 years ago and my neuro ran the same tests as you - my labs came back positive, emg - only minimal decrement (in fact the neuro who ran it said he didn't think I would show any mg symptoms), and CT all clear. I responded to Mestinon straight away though, so got my diagnosis. Since then my sympotms have changed radically and last year my classification changed from mild generalised to moderate. Thankfully I've never hit crisis point though! I think my emg didn't show much because it was done early in the morning, when i was well rested and was done on muscles that I didn't have any trouble with at the time (arm etc). I also was quite fit when diagnosed (used to hike, rock climb, do a lot of heavy lifting at work, etc) so I think my over all muscle strength compensated a bit for the weakness I was experiencing.

I think you should definitely keep at your docs for an mG diagnosis - esp with your enlarged thymus - that's a pretty strong indicator in my opinion (obviously not a medical opinion though). Have they discussed surgery with you? We are all so different, but it certainly sounds like you are showing early signs of MG to me!

Good luck in your quest for a diagnosis. Hope you feel better! Try eating some bananas - they are my wonder food.
~Kathy