Get this......I actually asked one of the ER docs (while I was waiting for one of my nerve blocks.....he just wandered in and was hanging out in my room talking to me) if he had heard of RSD.......and he HADN'T. A freaking ER doc!!! I mentioned that in my TV interview. I should probably go be seen somewhere BEFORE that airs because I have the feeling not many docs around here are going to be real happy with my assessment of them after that (except for my current Pain Doc.....I like him).

A NURSE in the PAIN CENTER in a hospital that was giving me a nerve block had never heard of RSD (and stepped on my foot.....the hurt one.......and tried THREE times unsuccessfully to put an IV in me......without numbing meds).

Doesn't this sound like some kind of a sick sit com or something??? I even live in a fairly large city. One of the problems is that we are literally so low on money I don't know if we can afford an ER visit right now. I can't even go to PT. I try to just stretch and move my legs and ankles and fingers around while lying in bed.

I'm sorry......I'm really not trying to sound so pitiful. I accept our reality right now......I just can't deal with the PAIN. I feel like this disease is killing me......quickly.