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Old 03-07-2009, 07:41 PM
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Debby Debby is offline
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Join Date: Aug 2006
Location: N CA
Posts: 365
15 yr Member
Debby Debby is offline
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Join Date: Aug 2006
Location: N CA
Posts: 365
15 yr Member
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The drug I take for the burning is Neurontin. I take 1200 mg at 6am, around 11am & 5 pm I take 900 mgs. At 10:00pm I take another 1200 mgs & it helps ALOT for me. But then I also take an extrodinary amount of Morphine 3 times a day & I use OxyCodone MSIR when needed for BTP (break thru pain).

That is what I use mostly for pain. I take a couple other meds too like Baclofen (muscle relaxer) & Trental (it opens up the blood vessels, heart patients take this sometimes also I believe)

I don't know if that helps you or not but you asked what people took for the burning pain. I also try to keep my feet elevated. I too have RSD in both fee & have been lucky enough that it hasn't managed to spread. It does try to get into my hands & every 9 to 12 months I have a series of 6 SGB's done on each side to keep that in check. They, nerve blocks, do nothing for my feet but so far so good it hasn't gone up my legs either. They believe I got RSD from major nerve damage in the lumbar region of my back. Back surgery probably put RSD in check in my feet. I have had it since 2003. I was literally in an electric wheel chair for several years. I now can walk alot farther than could I could since I had back surgery. I still use my chair when going out though as I can't walk that far, yet. I have also used a scooter. Believe me it was difficult to navigate either one in our house as it is quite small but I managed. I could not take the 5 steps from our bedroom to our bathroom at one time.

Good luck. Oh my doctor wrote a script for the electric wheel chair & I had it in no time at all. The stupid company I got both the scooter & wheel chair thru didn't bill either one out to my health ins., which was Blue Shield of California, within the time limit & I never even had to pay our co-share amount for either one. And BS or CA refused to pay them. They were literally free for me.

Good luck kiddo & I sure wish you luck with it all.

DebbyV
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"Thanks for this!" says:
MominPainRSD (03-08-2009)