Mestinon - the same as that pyro worked for me - just not enough. I needed steroids in order to function. I have been on them for 11 months now........On the positive side I can still walk, talk, breathe and my face is now longer a "mask", so the side effects (which suck) are still less bothersome than going without......
Hang in there!

You may just need some roids in order to feel better!

Erin

Quote:
Originally Posted by BARBARA356
Hi I am on the drug Pyro--- sorry can't remember how to spell it. I am still tired. My dr upped my pills by one. Are there instances where this drug just doesn't work? How dangerous are the side effects for the steroids. And do they help more?
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