Quote:
Originally Posted by chamade
Hey there, I also repeated my NCV/EMG a few weeks ago at the UCSF and it came back normal again after 2 years. BUT...my ACE serum levels came back high which points at Sarcoidosis, which can cause small fiber neuropathy (undetectable on EMG/NCV). I am having some tests done to confirm Sarcoidosis as my diagnosis so that we may start treatment.
Are you doing anything else besides EMG/NCV...blood tests for specific immune diseases, skin biopsy to check for small fiber neuropathy etc.? Do you have any other health issues besides neuropathy? That could point to a diagnosis/tests.
Keep going, something will eventually come back positive.
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Hi chamade. I am actually going to the neuro tomorrow and will find out some more results on blood work and MRI's. I also want to ask about a skin biopsy. Woke up this morning hurting so bad. At least I know though, everyone here knows how I feel. I hate this.
