Originally Posted by ali12

Hello and Welcome to Neurotalk, AshFreeze!!! You will meet many great people here who I am sure will be more than happy to help you in any way they possibly can!!

I'm so sorry to hear that you have RSD also and that you have suffered from it for such a long time ! I can't imagine having to deal with this disease for that long so I give you a lot of credit - not many people would be as brave as you!

I also suffer from RSD. I have it in my left leg and right arm - I developed it when I was 12 years old after an ankle sprain and I am now 14. Like you, I have tried many medications and treatments and nothing has helped that much so far. The only med that offers me some pain relief is Ketamine but my Pain Management Doctor doesn't like me taking it because he feels that it could cause some serious damage in later life.

Have you tried HBOT? I have heard from a few people on this forum that have had it and have had some positive results so that might be something worth looking into. I mentioned it to my PM Doctor a few months ago but he said that he didn't think it would work in my case - for what reason, I don't know! Also my Doctor suggested that I take Vitamin C on a daily basis as that can stop further disease occuring such as Osteoperosis so that might be worth looking into if you aren't already on it also.

If you have any questions, please don't hesitate to ask - I am more than happy to help you if I can as I DO understand some of what you are going through!!

Take care of yourself and I hope to see you around the forum more soon!