Just when I am going to go out for a walk, sun streaming through the blinds - there's a breeze too - I see the video and had to post. Then I listened to it again....new guidelines? NIIH? What do you think is the reason for this...and has someone got plans to light a fire under the NIH -and if there is a year of guideline writing ahead, patients in large enough numbers, must be in there.

How innovative can we be? It's usually measured in terms of organizations doing their thing all day long and pwps in submissive mode with the same top people in hypermode doing wonderful things and getting many awards. That is what we needed when we were kids..And these people earned their awards and make things happen - a real postive in the PD world....lol

But now we need something different. Sorry...another year is asking way too much and obama is completely out of touch. We have to do something - powerful. And the trained patient experts need to do it. The religious debate is over, but the way people differ in their thinking could hold up funding. i wasn't clear there- i'm calling for objectivity and fast results.

i'm not really thinking this out...it's flowing and it's true to me anyway. I am not criticizing - I'm analyzing and summarizing my world as i know it, assuming that someone will come in and correct me because now there is someone paying attention.

I wll eagerly await the actual document and see that CBS is still using David Prentice, who had his hair combed different, but still has GDNF on his list of Adult Stem Cell treatments..He doesn't represent me - I don't know how he gets away with it. He was also used on TV during Michael and the giant Rush week of wiggling and words, ending with Michael changing the majority in govt. Michael exposed himself like no other that week. magical to the pwp community; because no one had ever done something like that before.

you can't trust anyone to be objective on the hill....sorry. should patients decide?I think we are going to see that the religious debate was only part of the hold up. The majority rules, and who can we trust to represent everyone? Obama is either out of touch here or is just going to not carry thru like other presidents? We have to get in there this time.....who has the chain for the fence? lol

I mean it tho. Why didn't i see this coming? Patients are monkeys. Gettin hot - going to Rick's grumpy corner. It will not happen without patient representation, because we will be upset about that and not feel the least inclined to recruit or participate in trials that have not changed one bit. Trials are what should have new guidelines...well i was fooled again.

There is a group who just wants to know which is better....it will get lost in the NIH amid name calling between the left/right.....endlessly. If that can't stop the people who do it need to be replaced.

bad news during sinemet overload hours....equals honest emotion..we need a third eye up there ...someone who knows how to use their pineal gland.
geez!



p