hi terry
i was 16 when i got rsd it started in my rt shoulder neck and arm. and now is head to toe and internal. there wasnt such a thing 11 yrs ago for kids with rsd at all. pt didnt work for me at all. my rsd spread to all four limbs in a matter of month.

has your son had any blocks or anything else done for his rsd?
i know that it was said meds dont work for kids and on my end that is wrong. i didnt ever take pain meds till i was 20+ but i was orginal on neurtion and remaron for sleep .then i had indwelling catherder that delivered for 1 wk of colondine and buvupicane (sp) then they took it out and did it again while i had these treatments i did have pt 2x's a day while inpatient.

but like someone else said please listen your son!!!he is goin to know when enough is enough or its too much.
the key to rsd is finding a doctor that really understands about rsd and the complexs that come from it. i have been through so many docs even mayo clinic and only 4 of them have ever really treated me and helped

i really hope that this will help your son
you can PM if you have any other questions
carrie