Wow, things I've been learning about lately....

No insurance company will approve IVIG for neuropathy unless you can document CIDP. They have gotten very very strict.

However, I too have IgG deficience (It's called Combined Variant Immunodeficiency Syndrome). It's a pretty common disorder, and it's treated with monthly IVIG. That the insurance companies are likely to approve.

They key is finding something they will approve it for and you've got it.

Now, why do you have CVID? Yes, it's common, but it's probably exceptionally common with lyme disease. So, the question I've been asking everyone lately: Have you been tested for lyme at one of the ILADS recommended lyme labs, which I've posted in my sticky?

If not, I suggest you get tested. I used Igenex, but the other two are supposed to be fine, also.

There's some talk about whether IVIG will help make lyme treatment more effective, but at this point my doctor wants to do just one step at a time, so despite the CVID, I'm just on antibiotics and we'll see how that goes.